Since
1100 AD, descendants of the Aymara & Inca empires have traversed the
expanse of the altiplano, or high
plateau, to descend into the crater-like valley of La Paz. Not much has changed. But today the journey for our patients is
different. They come in search of the
holy grail; on the chance that they will be among the lucky ones eligible for
surgery. Ten year old Miguel is among
them. His hands are grotesquely swollen
and deformed from a rare congenital disease.
His
reality stirs a discomfort in us, because we see in him what we might have
been. He is the reality that we escaped
because we were born, by chance, undeformed. He is a reminder of everything that we take for granted. Children with deformities live robbed of
childhood, with no claim on this happy world.
But fate has conspired against Miguel once again. Sadly, he cannot be helped with surgery. As he whispers aching secrets in his motherĀ“s ear, the agonized look of disappointment on her face twists our hearts into knots. It is almost too much to bear. The physical and emotional toll that this journey has taken on Miguel and his mother weighs heavy on our hearts, but their disappointment fuels our determination to carry out our mission.
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